The Wombat Wobble

Hi all,

Just a short update this time.

We have had a pretty uneventful week or so, really busy, but not too exciting!

Jasper has been practicing for his school assembly - the pre-primary classes did a "dance" for the whole school.

It is something that happens at assembly every fortnite - a class does an item, and this was the Pre-Primary kids turn!

They are aged 5 to 6, and it was very cute.

No school uniforms today, they had to dress in browns and earthy colours - to look like wombats!

I have a video of the song (it is very long and repeats itself a lot - but again, they are 5 and 6 years old!).

Here is a photo of my little wombat..



























It was very cute! They made the ears at school as part of the preparations and got their noses painted in the morning before the assembly started.

Ok, so the video.. it is a bit grainy, but it was just on my little camera... Jasper is up the back (smart move, smallest kid gets put up the back..). he was messing around a bit (so being up the back was not so odd..), being silly trying to hide from me. He is back row, second in from the edge.. just look for the little guy!!

I got distracted part way through and the camera kind of just goes off the performance..

The song was so funny. They did a really good job - there are hundreds of faces staring at them from the front, and there were no tears from anyone!

No medical updates today...

Ok, I give up on the video.. it took 45 minutes and still was not uploaded. My computer is so SLLLOOOOWWW. Sorry people, I will try again another time. I have things to do now!!

Thanks for reading.

Brooke

Media Star in the Making

Hi all,

Well, Jasper and I have had a big week!! Believe it or not, this post wont have any photos! It is the first one like it!

Well, the week started with Jasper and I being on the front page of the North Coast Times, (a local paper here in Perth). It was really funny as some of the kids at school were telling Jasper he was famous. he loved it!

THEN I got a phone call from one of the producers at 6PR (a radio station) and they wanted us to come in and do an interview on Sunday morning. Of course, I was all for that. (They had read the local paper and started ringing B Miles in the phone book!)

Meanwhile, we got the FARF (Fanconi Anemia Research Fund) quarterly newsletter that had our story in it as well. I had actually forgotten about this one as we were asked to write the article when we were in America (August).

I also had a fundraising note on the back of the school newsletter about Fanconi Anemia Fundraising.

All in all, we have gone media-crazy!

Jasper was so good at the radio station. I had bribed him before hand, but don't think I needed to. He was telling jokes and everything. After, he wanted to go back in and say hello to all his friends, but we were done.

I am really happy that there are some places that are taking an interest and I can help raise awareness. it is really hard to get momentum with something so rare, but if I am not an advocate for my child, who will be?

If I am not talking about FA and helping to educate people, who will?

There are not a lot of us out there affected, and I know everyone is doing their best to raise awareness, I just hope I can make a difference too.

Thanks for reading.. Maybe the next post will have some photos!!

Brooke